Diagnosis for Wyatt and a game plan.

Wyatt had his appointment this morning with a doctor in the Pediatric Infectious Disease department. He has been through all of Wyatt's history and asked me a bunch of questions. He examined Wyatt quickly and said he was sure he knew what was going on. The doctor said he is sure Wyatt has the fever disorder PFAPA just like we thought. It seems to be a pretty classic case. Basically Wyatt has a hyper immune system. For unknown reasons his immune system goes into over drive every 4-6 weeks attacking an infection that is not there. They don't know why this happens. It is genetic so there was nothing we could have done to prevent it. Thankfully it is easy to treat and Wyatt will out grow it some time between the age 5 - 10 years old. In the mean time we will treat each episode with a low dose of prednisone. The symptoms should disappear in 1-2 hours after receiving the medication. Which is a huge difference from the usual 4-5 DAYS we are used to. Sometimes the meds can cause attacks to come more often. If we get to a point where Wyatt is having an attack every 2-3 weeks instead of the usual 4-6 weeks then we will discuss removing his tonsils which cures it for 2/3 of patients. While the disorder is actually pretty common it is not common for more the one family member to have it. It happens but very rarely so Adelia should be fine. But at least we know what to look for and what to do if she starts exhibiting symptoms. The doctor said the child with PFAPA is usually the healthiest person in the family outside of these attacks. I believe that because Wyatt (like Bryan) almost never gets colds or the flu. While we were there Wyatt got his flu shot so that is taken care of too. I am so relieved to finally have a diagnosis, a prescription, a game plan and a light at the end of the tunnel.

June Update and Great News

It is June and the day before Wyatt's second birthday. For your birthday Wyatt you get .... to be a big brother!





I got my first BFP on May 30th. It was super super faint so I tested with a digital test and got a PREGNANT result! I went on Friday for a blood test. My beta was 31. The nurse called and said that was low and they wanted me to go in on Monday and do another beta. So I went in super early Monday morning and still had to wait in line forever just to get checked in. The nurse never did call me back but thankfully I can check my lab results and see the nurse's notes online. My second beta was 102! It more then tripled! That is fantastic news as they just wanted to see it double in that time frame. I also had my thyroid checked again and it was at 2.2. She wanted it 2.5 or lower so the medicine is working well! Obviously since I got pregnant on my own.

I of course have been worried the last week. Between our former loss and the nurse scaring me about my number I was a wreck. I did some checking online and asked a bunch of people from different boards. Apparently my number was actually very normal for where I was in my cycle. I tried to tell the nurse that but she didn't seem to be listening to me. So I took many many many tests over the last week. Yes I know I am crazy. But when you are TTC for a long time and especially with infertility you tend to stock up on pregnancy tests so you can test as you like with out having to constantly run out to the store just to get your period an hour later. You find a good deal and you stock up! So here are a few pictures of my progression from 10 dpo when I got my first faint positive test to 15 dpo when I stopped testing.




 











Baby #3 is due February 10, 2013. This will be my first non summer baby. So much for hand me downs!

May RE Appointment

I have had a crazy busy day today. I had an eye exam this morning because of the blurred vision in my left eye. It turns out my cornea is inflamed. The doctor gave me steroid eye drops that I have to take for the next 5 days. Then I return in 2 weeks so she can recheck my eye and make sure it is all healed up. I am so relieved that it is nothing serious and hopefully easily fixed now. I have only taken one dose of drops and I can already see better out of that eye. The best part is I don't need new glasses!

I had my RE appointment this afternoon to go over all the tests I had done and for a weight check. I have lost 15 pounds since my last appointment with her in March! The nurse actually made me get off the scale so she could recalibrate it and then had me get back on to make sure the numbers were right. Mildly insulting but what ever. LOL My RE was very impressed with the weight loss and kept telling me what a great job I am doing. That was nice. 

The doctor said my ultrasound looked great. There is no scar tissue like there was before from my c-section. She said my ovaries looked great, no cysts and plenty of eggs in there. Woohoo! One less thing to worry about! 

My labs showed that I have hypothyroidism so she put me on synthroid. She felt my 3 hour glucose numbers were to high and says I am pre diabetic. So she prescribed me metformin. I will be taking both medications once a day. I am not thrilled that there is something wrong but I am relieved that there might be a reason with an easy fix for my infertility. 

I go back in 6 weeks for a blood test and another follow up appointment. If the synthroid is doing it's job and I keep losing weight she said she would feel ok prescribing me clomid!!!!!!!!!!!! I won't have to lose all the weight she wanted me to lose! So I really have to work my butt off and make sure I continue to lose weight over the next 6 weeks. Both medications she gave me have weight loss as a side effect. So she said they might even help me lose extra weight. I am so nervous and excited all at the same time. I don't want to mess this up and give her a reason to decide not to give me the clomid. On the other hand I hope the medications help even me out super quick and I get pregnant on my own. LOL Either way at least we made some huge steps forward today. 

Something has got to give

I feel like my head is going to explode. I am so stressed out and it is like 4 or 5 different things and I can't seem to make any great strides on any of them.

I call about the job but no one returns my phone calls. I sent an email today saying I was still interested in the position and I wanted to know if I was still in the running for the job or not. Ethan is starting to freak out about money and I have nothing to give him to make him feel better. I have some money in saving but it will only help out for another week or two. Then I don't know what. I just wish they would call. If they have no intention of hiring me then fine. I can move on and look for another job. I have an application filled out for a day program that is similar to the group home job I did. It would be nice because they are not open on weekends or holidays. But the pay will be a lot less. Of course at this point all I care is that I start getting a pay check. It sucks because I LOVE being home and don't want to work. So I have to work.

There are things I want to do to improve the house but I can't because I am not working so we don't have the extra money. We desperately need another dresser in our bedroom. I took all of the pants out of the bottom drawer so I could put the rest of Ethan's shirts in it. Now all of our pants are sitting on a tote of maternity clothes next to the dresser because I have no where to put them. I want to get one of those bookcase thingies that you put the cloth open top drawers into for Wyatt's toys. He has managed to crap the top plastic shelf that I have his toys in now. So I need something more sturdy and something that hides the chaos better. We need to stain the sliding glass door. We need to paint the living room and our bedroom this summer. But with no extra money coming in all of that has to be put on hold for now. Which just plain sucks.

I am stressing out about the results of that ultrasound. I check the website everyday but they don't post anything. They may not post anything at all. When I talked to the ultrasound tech she said I had to wait until my follow up visit to get my results from my doctor. That is still a month away. So I have no idea if anything is wrong or not. If I do have scar tissue I would have to have surgery again to remove. Obviously that is not even remotely an option right now. I can't take the week off I would need to recover from the surgery when I get a job,. And I have to get a job. If it was something I had known about weeks ago I could have done it. But now it is to late. So that might make getting pregnant very difficult or even impossible.

I am still so angry that the RE won't help us. I can't get pregnant on my own. She won't give me the Clomid. I feel like time is running out. I am doing my best to not feel hopeless but I start to wonder if we will ever have another child. I love my boys and am so grateful for them. But I want more then 2 children. I wrote on a facebook secondary infertility board that if Michelle Duggar is allowed to have 19 children then I should be allowed to have 3 or 4 children. The fact that I have 2 children helps but does not make infertility any less painful. It is not a crime to want to complete my family but this RE makes me feel like it is!

I have to lose weight if I ever want her to give me the medications. I am angry that I am being bullied into losing weight instead of doing it because I want to. All I want to do is bury my head in a bowl of mac n cheese but I know that will only make things worse. So it is a constant battle to eat less and get moving when all I want to do is sit on my butt and shovel nummy food in to make me feel better. It is a slow process and I have so much to lose that the whole thing makes my head spin.

Something has to give soon because I am pretty sure I am going to explode. I am just so frustrated and I am not sleeping well. So I am tired and cranky most of the day which makes it even harder to get up and get moving or clean the house. *sigh* If it was just one hurdle it wouldn't be so bad. It is the long line of hurdles in front of me that is making my nuts.

Ultrasound

I had an ultrasound done today to check for endometriosis. They didn't tell me anything at the appointment. She said I would have to wait until my follow up appointment with my RE on May 9th to get the results. I am checking the website to see if anything is posted with some results like they did with the blood test results. But so far nothing has shown up. It is going to be a looooooong wait for the follow up appointment. Fingers crossed that their is no scar tissue again because I don't have time to take a week off to heal from surgery again. Plus I don't want any more hurdles to have to jump to complete our family.

Uterus ... I think we need to have a talk

Look uterus we need to have a talk. Unless there is a baby in you I don't want to hear a peep out of you. This bucking like a wild bronco for 4 days is uncalled for and pretty much ruins my weekend. Do what you need to do but do it silently because bleeding like a stuck pig is more then enough punishment for one day. If you can not abide by these rules I will have to evict you all together. So the next c-section you better be shaking in your obviously stiletto heels princess because the baby may not be the only one with a one way ticket out!

To fat for babies

Long story short my RE told me today I am to fat for babies. Don't worry she wasn't that mean about it. Both of the doctors I saw today were very kind but made it very clear that they would not help us have another baby until I lost a significant amount of weight. I crunched the numbers and I will have to lose roughly 93 pounds before they will let us have clomid again.

She will still be running all the basic tests on me like she did last time. Blood tests to check my hormone levels and my thyroid function. She is throwing a few new tests in this time. I had some endometriosis last time that she preformed surgery to remove for me. She will be doing an ultrasound to see if any of it has returned and if I will need more surgery to remove it again. On Wednesday I have to have a 3 hour glucose test done to test for diabetes. Yes it is the same test they do during pregnancy when you bomb the 1 hour one. She thinks it may be the reason my cycles are so long and I ovulate so late. If I am pre diabetic or diabetic she will put me on Metformin. It will both help me regulate my sugars and lose weight. What a lovely side effect! Good be worse ... good be a leaky butt like other drugs.

I have agreed to see a nutritionist and seek help from the weight loss clinic. If I can prove that I am really putting forth the effort and losing weight they may bend the rules and allow me to try clomid sooner. But either way I have to lose at least some weight to have another baby.

I was not happy and am struggling to not take it personally. I am a good person who wants to have another child. I love my kids and take good care of them. So it is hard to hear some one say you are not fit to help get pregnant. It is crushing. So my options are lose weight or not have anymore children. And the second is not an option for us. So I guess I have no choice but to work my tooshy off to make my way to baby.

Surprise! It's a + OPK

I just wanted to share some pics and video of the surprise + OPK I experience the last few days. I thought I had ovulated but obviously I was wrong.

These showed up on March 18th

And these on the morning of March 19th

Well I guess I was wrong before. LOL If you want to hear the surprise in my voice feel free to listen to me here.

http://youtu.be/md2LYfQGf-o

My First TTC Vlog

I am starting to vlog and I have recently posted a video on TTC. You can watch it here ...

http://youtu.be/C_WkuoCjVdM

I had a RE appointment today and plan to put a video up in the next few days about how badly that went.

Unlucky Cycle #3

Well cycle # 3 was not lucky for me at all. I took soy isoflavones this cycle. I was hoping it would help me O earlier but it did not. I still didn't O until CD 28 and ended up with a 40 day cycle. I felt like my CM wasn't great either. The B6 seemed to still help with my LP. It is not great but I did get to 12dpo again. Hopefully if I keep taking it I will eventually make it to 14dpo or more importantly a BFP. I felt like I really struggled to O this cycle. I had a feeling that despite our olympic BDing around O it would not be enough. My body tried to hard for to long and I am sure the quality of egg that popped out wasn't great.

I do not think I will use soy again this cycle. I don't feel like it did me any good so why put myself through it again. I want to continue until the end of the year with charting, OPKs and my fertility monitor. DH wants me to call the RE ... TODAY and get the ball rolling. I am not sure I am ready to go there yet. I want to give it until the end of the year to try on our own. They said we only had to wait 3 failed cycles but I feel a little better going in and saying we have been TTC for 6 months and it is not working for us again. I don't know. Maybe DH is right and I should at least make the phone call. Maybe they will tell me Wyatt is to young and I need to give my body more time to heal. Maybe they will tell me my weight is to much and I need to lose some weight first. BTW my RE from last time never said a good gosh darn word about my weight or DH's. But it is still a fear because one of her coworkers did say something to me after I got pregnant with Wyatt. I guess I don't really know what I am afraid of. Just hearing some one say no we will not help you have another child yet. I would like a chance to try Weight Watchers again and maybe lose some weight. That would be another thing I could go in saying "I know I am fat but I have been working on losing weight and I have lost X pounds while we were TTC". I don't know. I will have to sit down and talk to DH about it more tonight after work. Fingers crossed that this will happen for us and we won't have to see a RE again. I have one poof baby. Why can't I have two? LOL

Fun with the ring test.

I was watching some of the vlogs I subscribe to today and one girl did this fun ring test to do the gender of her baby.



http://youtu.be/-k14-eeUyuk



She took her wedding ring and a piece of her own hair to hand her ring from. She asked yes or no questions first to get what means yes and what means no. If you watch the video you will see what I am talking about. I decided to give it a try for just regular yes or no questions to see what happened. I did it a couple of times and got the same result every time.

I used 3 objects and asked first if this object is (insert correct answer here) and my ring would swing back and forth. Then I would ask if the object was (insert incorrect answer here) and my ring would swing in circles. So back and forth meant yes and circles meant no. Once I had that down I started asking questions.



I held my ring over my belly and asked if I was currently pregnant. My ring swung back and forth. That is a yes! I then asked if I tested this weekend would I get a BFP. Again my ring swung back and forth. Another yes! I then asked if I was pregnant would this baby be a girl. Yet again it swung back and forth. Yeah baby girl! Lastly I asked if I am currently pregnant would this baby be a boy. I got HUGE circles! So that would be a no to a boy.

I made a couple of videos to show how it worked for me.

Video 1
http://youtu.be/aZEw_8huIiM

Video 2
http://youtu.be/fLTN7sr6mnQ

Lucky cycle #3 for baby #3?

I am officially on to cycle number 3 of TTC baby number 3. Booooooo! This stinks! But I knew I didn't have much hope for this last cycle. I ovulated way late and then we only had sex on the day of ovulation. So it was pretty far fetched to think I would be pregnant now.

I woke up at 3:45 am this morning with some majorly nasty cramps. I got up and took some ibupofen and attempted to go back to bed. I was in to much pain to sleep and laying down made the cramps worse. So I went out to the living room to sit in the recliner while I waited for the ibuprofen to work. I drifted off for a little while and woke back up again at 5:30 am. I felt worse then I did before I took the ibuprofen. So I took some tylenol and that has helped a little bit. I still feel lousy but better then I did. I still think cramps are salt in the wounds. It is bad enough that you are not pregnant but now you have to feel like poop to drive home the point. UGH!

At least I have a plan for this new cycle. I can start fresh and hope that this will be our cycle. I bought some soy isoflavones to try out. I will take it just like I took clomid while TTC with Wyatt. I will continue with my prenatal vitamin, B6 and iron supplements too. The B6 helped lengthen my LP this cycle by a couple of days. The iron has been helping my energy levels. I have been getting a lot more done at work and at home. So I am going to continue those things and try the soy isoflavones also. Hopefully it will be the right mix and I will be expecting another June baby!

Catching up

I obviously need to take some time to catch up. I get so caught up in the day to day business that I forget to keep track of everything Wyatt is doing.

Wyatt is 13 months old now. He is walking a lot. Wyatt took his first steps on Memorial day. By the 4th of July he was walking a lot on his own. Now he walks more then he crawls. It used to be the other way around. He is so proud of himself and is so darn cute. It is hard to yell at him when he is toddling away from you no matter how horrible the thing he is doing is.

He knows how to crawl up on to the furniture and get back down on his own. He often will climb onto the arms of the couch and has fallen off twice now. You would think he would learn but that kid is fearless. If you leave the recliner unattended for more then a few seconds he will crawl up into the chair and make himself at home. Wyatt will either be slamming his little hands on the keyboard of the laptop or throwing everything off the side tables. He does not care if you just opened that can of pop.

Wyatt is not talking much. He picks up a new word every now and then and will use it over and over and over again until your head is about to explode. Then he just stops using it and moves on to something else. For the longest time it was the word tree. Everything was a TREEEEEEEEE!!! While he may not talk a lot himself he does understand and respond to you. It is way to funny when you tell him to paddy cake and he starts clapping his hands. Throw it in the oven is by far his favorite part.

So now that our little one is well on his way to being a toddler I am getting the ache for a baby again. I know crazy. I miss snuggley cuddly baby time. Even if Wyatt was never much of a cuddler. He is just to darn busy to snuggle. At least a year ago he would hold still once in a while. So it is starting to feel like it is time to TTC again. We will see what each day brings. I am praying that we have an easy transition and get pregnant quickly. I do not wish to return to our RE if we don't have to no matter how wonderful she was. But at least we know where to start this time around if we end up needing the help. Fingers crossed that we won't need any help.

Bring on the teeth!

Wyatt is teething again. He cut his second tooth yesterday morning. He now has the two bottom teeth in the front. He is working on the two front top teeth also. It has been kicking his butt! Wyatt has had a low grade fever and crabby and chewing on everything. It has been miserable. Wyatt has barely slept at all two nights in a row now. You can see his top gums are swollen and red. The two teeth are bulging at the gums. HURRY UP AND BREAK THROUGH! So my boy can get back to being a happy little man ... and sleep again!

3 year angel anniversary

Today is our 3 year angel anniversary. I can not believe it has already been 3 years since I miscarried. It is one of those things that seems like it happened just yesterday and an entire life time ago all at the same time. We had tried so hard for 2 years to get pregnant. We were so happy and excited to finally be having our first child together. We had shared the wonderful news with all of our family and friends.

But shortly after sharing the news cramping and spotting began. The doctor told me to lay down, rest and drink lots of water. Hoping that was all I needed to do to stop what I knew was happening I spent a few days in bed trying to rest. But it did no good. Our baby had no heart beat on the ultrasound. 3 years ago today the contractions started and we lost our child ... our dream ... a member of our family who we already loved more then life itself.

I wish I knew then what I know now. It would not have cut the pain. I lost a child. My baby died and there was nothing I could do to stop it. Nothing makes that better. But at least if I had known 3 years later I would have an amazing baby boy to hold and love I would have had hope. Back then I had very little hope.

Every holiday is at least a little difficult because I know we are missing a family member. I look at Bob and my heart aches for the baby who should be his age. The child who should be a big brother or sister right now. But then I look at my boys and I am grateful. I am grateful that I had the strength to make the choice to keep and raise Bryan. Despite all that has happened I have never for a single second regretted my decision to parent. I am grateful for the gift of experiencing pregnancy, birth and raising a child with my wonderful loving husband. Something I was worried I would never get to experience. I am grateful for this beautiful, high energy and extremely happy baby boy. Wyatt is every thing I dreamed off. He is everything I thought I lost that day. He is my light. He is my hope. He is my joy. I am grateful for my husband and my sons and my sweet angel baby in heaven looking down on us. We love you and we miss you every single day. You are never forgotten angel. Until we meet again we love you.

On the move!

This boy is all over the place now! I was pumping yesterday. I watched Wyatt army crawl (because he hasn't yet figured out that he can go forward on his hands and knees) around the side of the couch and out of my line of sight. So of course I had to turn the pump off and figure out what he was up to. Because every cord in the house looks like it needs to me wrestled and eaten ... NOW! Because the chihuahua is Wyatt sized and her ears are fun to pull and her eyes even more fun to poke. Because the carpet is coming up in front of the recliner and apparently Wyatt has taken up the art of carpet removal. Can some one teach him to mop or vacuum instead? Because people throw things towards the bathroom garbage can but make no effort to pick it up when they miss by a mile. So I turn off the pump and walk around the couch. Wyatt was in front of the bookcase playing with the movies on the bottom shelf. He had pulled one out. I informed him that he was far to young to watch Resident Evil and told him to get out of there. But instead of backing up are turning around he gets on his hands and knees and rocks back and forth. Then screams in anger when he cracks his head on the book shelf over and over again. *sigh* It is a good thing he is cute.

Separation Anxiety

Separation anxiety has set in ... lucky me. Don't get me wrong I love snuggling the baby. But he wanted to be in my arms for large amounts of time yesterday. And if I wasn't snuggling him while sitting in the middle of a pile of laundry that I only got half folded and that he was wiping his nose on then I was chasing him around. He does not crawl yet but he does creep. He pulls himself around on his belly with his arms like some kind of tiny little zombie child. (He bites with that one little tooth so be careful) It gets him around and it gets him there pretty fast. And the Christmas tree is still up. I have been sick. He decided that his big brother's Christmas ornaments and the string of lights looked like fabulous things to chew on. With out the presents there to block him it was a free for all. My tree skirt is no longer under the tree. He pulled it out, rolled around in it and left it for dead in the middle of the living room. *sigh* Why are boys so messy?

6 months old

I am so far behind on blogging it is crazy. Wyatt and work have been keeping me so busy I just not had time to sit down and write. Which is sad because I love writing. So here is a quick update on my little baby boo!

Wyatt is 6 months old ... almost 7 months old now. He is rolling every where and creeps around the floor. It is not exactly crawling because he is on his belly not his knees. But he gets to anything he wants to get to and a whole lot that he isn't suppose to be getting to. I am so happy to see him playing with toys. I would be a little more happy if he wasn't launching them across the room half the time. Wyatt loves his jumparoo. He can jump and play with the toys on the tray for hours.

While Wyatt is still mostly just on milk he has started solid foods. He isn't the biggest fan but slowly he is accepting more and more food. Wyatt LOVES the mashed potatoes at one of our favorite restaurants. We usually run out before he gets full. I am looking forward to giving him finger foods soon. I think he will do well. Everything else ends up in his mouth. Why not a little food every now and then. I continue to pump breast milk for Wyatt but I do not make much. A bought of the flu recently made a bad situation worse. So I only pump a few ounces a day. It is very frustrating that my body is weaning long before I am ready to. But I am happy that I have given Wyatt almost 7 months of breast milk. Even if it is largely supplemented now with formula. I will continue to pump until my body gives up completely or Wyatt turns one year old. Which ever comes first.

We have had some rotten illnesses lately. It sucks pretty bad when Wyatt is sick. He just lays there and whines non stop. Very exhausting and frustrating. I wish I could explain to him that sleeping will make him better. Moaning at the top of his lungs not so much. But of course he doesn't understand that.

So we are doing well. Wyatt is growing and developing well. His weight is on the low end but Bryan was the same way. I am sure Wyatt will catch up too. Until his next appointment at 9 months I will just have to fatten the baby bear up.

Update on Wyatt's metabolic disorder

Ethan called and talked to the geneticist this morning. We have been waiting for several weeks for the test results from the skin sample (Wyatt's foreskin) that they were using to do more extensive testing. The blood tests that they were doing were not giving them a clear answer. The man who made the test for the newborn screening said Wyatt does not have VLCAD. But they wanted to do more testing. The tests came back negative. Wyatt MIGHT be a carrier of VLCAD like Ethan and I are. But he does not seem to have the disorder. The doctors of course still won't give us an absolute. I personally don't think they want to admit they were wrong. Wyatt appears to be healthy and maybe the newborn screening test was to sensitive and needs to be adjusted. I would never want another family to go through what we have been through.

The good news is we have been given the ok to treat Wyatt like a normal baby. I no longer have to wake him up to eat ever 4 hours at night! They still don't want him to go longer then 8 hours with out feeding. I can't imagine him going that long during the day at this age. And 8 hours straight at night would be a blessing! I can't wait to let Wyatt sleep as long as he wants! I am sure I will be nervous tonight and maybe not sleep so great. I have no idea how long Wyatt will actually sleep. He is so used to getting up every 4 hours to eat he might wake up on his own out of habit. But I broke the eating every 2 hours habit. So hopefully he will eventually start sleeping longer now that I can let him sleep. I look forward to being more rested!

Another perk is we no longer have to test his glucose. We were not doing it often. Only if we were worried about him or if he accidentally went longer then 4 hours with out eating. His blood sugars have been great. So the doctor gave us the ok to stop completely. Of course if we are worried that Wyatt is showing signs of low glucose we can still test him. If for no other reason then to make us feel better. But we don't HAVE to anymore.

The geneticist told us we still should be careful if he gets sick. Illness can be a trigger that could cause him to have some kind of metabolic disorder flare up and get really sick. If Wyatt is not keeping anything down or has not been able to eat for more then 8 hours we are suppose to call his office. He would prefer we call him instead of our family med doctor because he obviously knows more about metabolic disorders. He will instruct us where to go and what to do to help Wyatt. But he wants the ER to be our absolute last resort for Wyatt. He admitted that the ER handled Wyatt's situation HORRIBLY and Pediatrics wasn't much better. The Dr. does not want us to end up in the same miserable situation. So if Wyatt is sick enough to contact a doctor he wants to be that doctor. He will be available to us at all times. I trust him when he says that because he was when Wyatt was in the hospital. He called every 2 hours from his home all night long. He fought for us to go home with Wyatt when the other doctors wanted to keep him jacked up on glucose water. It is nice to know that we have some one in our corner.

The geneticist said he is having a conference this afternoon. There will be a bunch of doctors from the Mayo Clinic there to discuss Wyatt. It is weird to think there is an entire conference happening today because of our little Wy Wy. I hope that our story can teach other doctors and help any family that might some day be in our position. Hopefully they will never have to go through the hell we went through.

Thank you to every one for your prayers and positive thoughts. They truly helped Wyatt and got us through a tough time. I reaffirmed two truths. The power of prayer and the power of mother's milk are amazing and healing! Thank you!

2 months & 12 years

Bryan and Wyatt had their well child visits today. It went very well and both boys are healthy. They both had to have shots. No fun! And they both got weight and measured and poked and prodded. I am glad it is over and that they are both doing great.

Wyatt went first. He is 9 weeks old today. Wyatt weighed 11 pounds 3 ounces. He is 21 inches long and his head is 15 inches around. The doctor said he is short but gaining weight very well. That is a good sign considering we still do not know for sure what is going on with the metabolic disorder. Bryan was pretty short when he was little too. And look at him now! Wyatt is growing steadily and the doctor says that is more important then where he technically falls on the growth chart. All things I have heard before when Bryan was a baby but still nice to hear again for reassurance.

The doctor checked Wyatt over and said that every thing looked good. There is no longer a click in his hip. He has a swollen lymph node but it is no big deal. I asked him if he thought Wyatt's right testicle was descending yet. It has been hanging out pretty high but I knew it was there. He said that it was down. WHAT?! I told him it was not down when we left the house to come to the appointment. Well isn't that a nifty trick? The doctor laughed and told Wyatt he had pretty good timing! I swear they live to prove you wrong!

I asked about the reflux too. He said it was pretty normal in babies. He is not worried about Wyatt puking some of his feedings up as that is also pretty common. We should just continue to do the things we are doing (keeping him upright during and after feedings, burping him really well, the gas drops as needed) and he will out grown it very soon. Wyatt's digestive system should start maturing more in the next few weeks and the reflux will likely go away on it's own before we know it. I hope it is soon ... I am sick of getting puked on. LOL

I asked how long Wyatt can go with out pooping and the doctor said 5 or 6 days is not uncommon. We can try a little juice after a few days but otherwise don't worry about it. Being that Wyatt drinks breast milk only if his BMs become hard and pebble like then I should give him a call. But otherwise he should be good.

The doctor asked several questions about different milestones Wyatt should be meeting. He was doing them all which is always a relief. The doctor asked if Wyatt laughs yet. I said not really but I have heard him giggle a few times while he was asleep. He asked if Wyatt was smiling when he laughed and I said yes. The doctor said then that counts! Wyatt must have been having a really good dream. LOL He says that Wyatt should start doing it while awake in the next few weeks. But even him laughing in his sleep was a good sign. Good to know!

Bryan was up next and was fairly simple. He is 5 feet 1 inch tall and 140 pounds. That puts him in the 75% for height and 97% for weight. The doctor said while the percentages look a little scary he does not think Bryan is over weight in anyway . Because of his height it kind of counter balances his weight. Yes he is heavier then most kids his age but he is also a LOT taller then they are too. And visually he could see that Bryan is not at all over weight. So he felt there was no concern. Bryan has hit puberty a bit early and it shows in his measurements. It was hilarious to look back through his records and see how he was in the 8% for height and 23% for weight when he was 2 years old. 10 years later he is a moose! HA HA HA

I thought it was pretty funny to watch the doctor doing similar movements to check Bryan's hips as he does with Wyatt. Makes you realize just how long Bryan's legs have gotten. I always feel bad for the kid during the hernia check. The first look of terror comes when the doctor tells him to drop his shorts. Then again when he tells Bryan to turn his head and cough. LOL

The doctor asked him a bunch of questions. Does he play any sports? How much TV does he watch? How much time does he play video games? I mentioned that we live on a farm and that Bryan does help with the chores. The doctor was happy to hear that and said farm kids tend to be pretty active kids. So he was happy with that even though Bryan shows no interest in sports. I have a geek not a jock. I am fine with that. Especially since my geek could probably bench press most of the jocks his age ... he he he!

They both got shots. Bryan got 3 and barely flinched when he got his. He made it look far easier then it was for Wyatt. Poor baby! Wyatt also had 3 shots but boy howdy did he scream! The first one went in and he didn't react right away. You saw this slow realization of pain, his face turned red and then WAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHH!!!!!!!!!! The boy was NOT happy. The nurse said "And that was only the first one!" She rushed through the other 2 so I could pick him up to calm him down. I felt awful for the poor kid but also couldn't stop laughing. He would wail in this funny siren like increasing and then decreasing and then increasing again pattern. He was pretty ticked off for a while after that. I am glad he doesn't need any more shots until 4 months. I wonder if he will be more or less dramatic at that point. LOL

So the boys are good. Wyatt goes back again in 2 months and Bryan goes back in 6 months for a second dose of the Hep A vaccine. We are still waiting for more info on the VLCAD situation. There doesn't seem to be anything new in Wyatt's records and the geneticist has not called us back yet. So we will have to continue to make sure that Wyatt does not go past 4 hours with out eating. But then he wakes up every 3-4 hours anyway so it is not a stretch and not like I am waking a sleeping baby or anything. Hopefully we will know more soon. Hopefully it will be nothing and we can put that whole mess behind us soon.